I had my PT eval today! It went really well, I actually really like my physical therapist, she seems pretty knowledgable about everything thats going on with me, especially my knees! She even noticed a few things that I never even picked up on, that would have ended up causing me problems in the future. Thats the good news. The bad news is that I actually have three problems with my left knee going on all at the same time. It turns out that in both of my knees I have a second rare genetic condition called patella alta. What that basically means is that my knee cap sits higher up than it should, and doesnt follow along its normal track. This happens to make my patella extra prone to dislocations and subluxations (on top of the inherent risk for dislocations and subluxations that goes right along with EDS.) To add to that, because of the EDS, and my hypermobility in my knees, the grooves in my femur and tibia joint dont line up correctly to allow my patella to fit nicely into the track even if it wanted to. I have most of the pain in my knees when they are bent and the pain increases exponentially the longer I keep them bent, because my knee caps are not sitting pretty where they should be/would be on a normal person.... instead, they are resting on the edge of my femur, making awesome, tense, bone on bone contact that it freakishly painful. I have a REALLY high pain tolerance when it comes to this stuff, so trust me on this when I tell you, sometimes lately even this knee pain especially has me on the verge of tears.
Another problem with my knee is a pretty inflamed/angry tendon.... from what? No clue. Not even the slightest.
Also, apparently, I've been dealing with the knee pain for so long that as a compensatory measure I have developed what my PT said is called a heel whip. Normally we walk heel to toe, but with the pain in my left leg being so bad for so long I walk slightly different with my left foot. I can't even begin to explain it, and I'm not even sure I understand it completely myself.
Apparently my ankles are REALLY hypermobile, which I never know. How does one even test for hypermobility in an ankle? I've always known about my other joints, but know I'm curious about my ankles.
My right shoulder popped for the first time today, after leaving PT and I had a heck of a time wiggling it back into a comfortable position while trying to be somewhat covert about it (I wasnt at home.)
Also, those family matters that we supposed to be getting better, are only getting worse, and although I consider myself a very very loyal person, I cant keep going with the way things are, so the sake of my own health, and my own family. Tomorrow (I guess today, really) is going to be a long day of trying to decide what the right course of action is, because I'm really in between a rock and a hard place in this situation, and I have no clue what to do.
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