There are a few things that I wish people would realize though.... I dont mind talking about it, I like spreading awareness about a rare illness. I wish that you wouldn't ignore me or leave me out of events JUST BECAUSE YOU THINK IT MIGHT BE TOO MUCH FOR ME. It feels good to be included, and I live going to social gatherings, and it actually helps me to get my mind off of how bad I feel sometimes. If I'm not up for attending, then I will let you know.
I just remember what it was life before I got sick.... I REALLY miss spring time/summer time cook outs.
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