Friday, May 10, 2013

In Better Spirits :)

EXCELLENT appointment with the orthopedic surgeon today. Got some injections and start physical therapy in 2 weeks! He was unusually knowledgable about EDS, and full of great tips, and while he cant treat every part of my body that this deals with, its really REALLY exciting to know that I have the Ortho/Joint part under what seems to be really good management. I still have a long road ahead of me to getting a complete treatment plan in place, BUT this is a magnificent, HUGE step in the right direction!!!! Today has been a very good day :) 
So I've posted that statement now in three places, but I cant help it, I'm really happy about it, and its just a relief to have that checked off of the long list of things that go along with EDS, and trust me when I tell you, that this was a major one. 
I walked into the doctors office doubtful this morning, and thinking that like so many of my other doctors appointments as of late this one would not go positively, and would not end on a good not. I obviously could not have been more wrong. I didnt even have to tell him about my EDS, he knew it right away after he examined my joints and asked me about my pain. I was shocked to say the least. 
I'm finding that its a battle for us in the EDS world to find a doctor who will even know what that is, let along know enough about it to be comfortable to treat it and give advice out about how to better manage some of your symptoms. I seem to have gotten very lucky in that regard today. If anyone happens to be reading this, and any of you are EDSer's in the Northern Virginia/DC/MD area, and are looking for a good ortho send me a message, and I will give you his contact info. 

Also, I think I'm ready to stop throwing my pity party for one. Yeah, I admit it, I have been. I didnt really see it though until a conversation with a friend yesterday kinda made me open my eyes to it. I need to get back out there, and start living life again, although I must admit I'm a bit dumbfounded about where to start. Its something I'll have to put some thought into over the next few days, because this being lonely and withdrawn, and not socializing thing is not for me. I'm naturally a people person, but I've gradually allowed myself to hermit, and then blame it on others. Not anymore. 



I'm not sure if you can tell but these last few days have done me good. What I really want to do more than anything right now is find a good charity (thats not to hard on the joints ;-) ) That I can help out with. 

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